What can I say when i have all the words and yet part of me wants to keep them, and the feelings associated with them, tucked deep inside.
I can remember the smell of the hospital room, being snuggled up with my baby girl, waiting for test results.
I remember the face of the doctor, his thick brown mustache as he mouthed the words "juvenile rheumatoid arthritis"
I can remember the hot tears as i sat there wondering what the fuck can i do about this. I remember hearing "there is no cure"
I remember.
I remember countless days and endless prayers.
I remember having to give my girl shots that i knew would make her sick.
I remember arguments with the doctors
And endless physical therapy bills
I remember prescriptions that were more than i made in a week
I remember the looks people would give her as she was a 9 year old still in a stroller
I remember her gait as she walked when her joints ached
I remember
I remember managers who were so loving and understanding when i had doctor appointments
I remember people who came along side us and helped me carry the burden
I remember the strength of my girl as she walked in pain
I remember the day the medicine was covered by insurance
I remember when she was in remission
I remember how strong and brave we both had to be
I remember
Yea
There aren't too many things i will ever forget about the trials of JRA.
A lot can happen in 25 years.
More than i could have ever imagined.
The child she was then to the woman she is now.
I don't know how we did it.
Grace and love, I guess.
25 years.
Till the end of time. Plus one
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